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Psychotherapy Intern Debora de Souza on Grief Support

An Interview with Psychotherapy Intern Debora de Souza

Debora de Souza is a clinical intern at Seattle Anxiety Specialists for 2022-2023, providing care to those in need within our low-cost therapy program. She is finalizing her Master's degree in Clinical Mental Health Counseling at Seattle University and specializes in helping clients work through grief, loss and trauma.

Tori Steffen:  Hi everybody. Thank you for joining us today for this installment of the Seattle Psychiatrist Interview series. I'm Tori Steffen, a research intern at Seattle Anxiety Specialists. We're a Seattle-based psychiatry, psychology and psychotherapy practice specializing in anxiety disorders.

I like to welcome with us today, Clinical Mental Health Counselor, Deb de Souza. Deb is a clinical psychotherapy intern at Seattle Anxiety Specialists and she is currently earning her master's degree in clinical mental health counseling at Seattle University. She works with parents experiencing perinatal mood and anxiety disorder, known as PMAD. And she also worked as a grief hike guide, helping those grieving the death of a loved one to process their loss. So before we get started today, Deb, could you let us know a little bit more about yourself and what made you interested in studying mental health counseling and grief?

Debora de Souza:  Hi Tori. Thank you so much for having me.

Sure, absolutely. This is a second career for me. I have been in the business world for quite some time locally here in Seattle in corporate settings. I always had an interest in the psychology when I first started college, that was definitely one of the careers I was... one of the schools that I was hoping to go into. Just life happens, it didn't happen. I ended up being program management and business operations for most part of my adult life. But when the opportunity came with COVID and things happened, I got laid off and I decided that it was the right time to go into counseling given that was something that I really wanted to do. And I had a lot of interest and passions, like you said, in the area of grief and PMAD and anxiety disorders, as well.

So I said, no time like the present. I had already applied to Seattle University and got accepted prior to COVID and I decided let's just make this a new career path for me. And it's been really enjoyable. I really am glad that I took the leap. It's a little bit threatening, but it was fun.

Tori Steffen:  Yeah, that's amazing. It sounds like it just worked out time wise and you got to love that smooth transition.

Debora de Souza:  Yeah, it was great. Meant to be.

Tori Steffen:  Yeah, exactly. Well, can you describe for us how your time at SAS as a clinical intern has been so far for you?

Debora de Souza:  I started in September and I have to say it's been really, really good for me. I feel very supported at SAS, that's one thing I really wanted. I applied to several sites and I actually had already accepted another site. And when I got an email from SAS to interview. And it just clicked, it really clicked with the folks that I talked to on my interview, the approach that they had to internship and also I like the low-fee model that was offered, that interns participate, where we provide service to folks that may be in that gap where they can't qualify for insurance, and they don't have private insurance or state insurance, and we can provide a service to that population. That otherwise may not even have access to care. So it's been really, really nice. It's a small group of interns, a lot of support from great supervisors and also from the staff. So I feel ... again, I think as a new person, as an intern, new person on the field learning how to become a counselor, the support is critical.

Tori Steffen:  Absolutely. I would definitely agree with that. It's a lot of stuff to learn and I feel like you really learn it from experience. So having supervisors help you through a little bit is crucial.

Debora de Souza:  It's vulnerable work.

Tori Steffen:  Absolutely. What would you say has been the most challenging about being a clinical intern?

Debora de Souza:  Well, I think the truth that come to mind right away is that I kind of expected, but experiencing it is a little bit different, is how vulnerable it is for me as a person sometimes, and how I can get flooded and overwhelmed, emotions when people share things that might be triggering for me and trying to differentiate what is mine, what is the client? So that's been a learning. And I knew from a scholastic standpoint, but it's different when you feel it, when you're in the room with someone. So that has been something.

Also how imposter syndrome is real. Sometimes you sit with somebody explaining their circumstances and you're like, "I deal with that too and I'm still finding my way. How can I support you?" So that is real. I think just learning how to be a counselor or a therapist and sit with someone. One thing that I did not expect, I've always worked long hours and being tired. And I remember telling Case (Lovell), who is my supervisor, in the first week how completely exhausted I was after a full day. I think it was my first day with four or five people.

Tori Steffen:  Wow.

Debora de Souza:  And I was very emotionally and physically tired. I just wanted to come home and go to bed. That was surprising for me because it takes a lot of effort to really focus and listen. It's a different way of engaging with people that I wasn't used to. Because that's not how we do it in our lives.

Tori Steffen:  Right. Yeah, that's something I wouldn't have expected either. But knowing that, it does make sense that it'd probably be drained, especially emotionally and need a good day of rest after your first week probably.

Debora de Souza:  It's a learned skill I hope, it gets better over time as you-

Tori Steffen:  Yeah. Yeah. I think it's one of those things that the more you practice, the more that you learn how to do it better. And-

Debora de Souza:  Absolutely.

Tori Steffen:  Deal with the feelings that come with it. Well, what would you say has been the most rewarding about being a clinical intern? Any specific moments come to mind for you?

Debora de Souza:  Yeah, I keep going back to the... I guess, I'm surprised and touched a lot how vulnerable people get with you. And it sounds like cliche, but really genuinely honored that sometimes without not knowing much, two or three sessions maybe, people really share deep things that they may not have other spaces in their life outside of session to talk about. And I'm very honored by that. And I think that is one thing that I keep it in mind a lot, is that I get to do this job. I get to sit with folks and support them and how intimate it can be, the relationship in one way. When you are really vulnerable, and also how much trust they have on us to be themselves and not being judged.

And as for an example, one that I have a client that we have sessions where the camera's off. My camera's on, but the client's camera is off. I got used to it, that's how this client prefers to engage. And I remember the first time he turned the camera on and in the middle of a conversation and it was to show his dog, he was talking about his dog. And he kind of came into frame very briefly, but he turned the camera to himself and said “hi.” It was the first time I actually saw his face and I was almost a little bit emotional. It was so meaningful to me that he... because he trust me enough to be a little bit more vulnerable and just say hello. So we've been seeing each other for some time and he still keeps the camera off most of the time. But every once in a while he'll turn it on and say hi or bye.

Tori Steffen:  Ah, that's amazing. Yeah, that's, I'd say, such a wonderful moment to have with the client and kind of just know that you've built that trust with them. So that's amazing.

Debora de Souza:  It felt really good.

Tori Steffen:  And it must have been amazing to see his dog, too.

Debora de Souza:  Yes. He has a very close connection with his pet. We always talk about the dog. He always comes to the session with us.

Tori Steffen:  Really? Ah. That's amazing. Well, kind of moving over to the outdoor grief groups that you work with. Can you explain how those work for the audience and maybe what activities you guys usually do?

Debora de Souza:  Yes, I do, I do. I love ... it's a volunteer position with the local... not company, but with the local group called Wild Griefs in Olympia, Washington, it's a small group, they're expanding now. We are volunteer hike guides. And basically it's to partner the power of nature to process grief. It started off as initiative to support teens that were grieving. A lot of times the loss of a parent or a caretaker or maybe a sibling, and provide them opportunity in nature to bond with each other, to share their experiences. And that was how it first started.

Wild Grief has several programs, all nature related, all outdoors throughout the entire year. So it's not a summer/spring only. We go out in December, the day before Christmas sometimes.

Tori Steffen:  Wow.

Debora de Souza:  And they offer programs that are day programs, like hikes. Some are more nature walks, some are more hikes, like five hours or so. Also overnight programs, which is a four day backpack with teenagers and a group of us take teenagers out backpacking in mountains around Washington. And each day is framed, there is some process. Each day is framed to go... they use the four tasks of grief as a baseline, basically accepting grief, feeling your feels, adjusting to a life without the person that you lost, and then making a new relationship with that person. So we try to frame all... even if it's a short hike or if it's a four day camp, we try to do that.

We also have a camping program that I usually participate on, that I really like. It's with the family. So it's a family camp, everything's provided, literally from shoes to food to pants. The family just comes. So a parent or a caretaker and children that experience a loss within that family unit. And we spent three days together camping somewhere around Washington. And it's beautiful to see not only the parents relating and connecting, but how the kids really find support on finding another child that has lost their dad, for instance. And be able to just talk about it, which they don't have a lot of space, maybe, in their life outside, in school and other friends.

So both the family camp and the hikes are the longer programs. The other programs are day hikes. And they say something else like nature does the heavy lifting and we just really provide the safe space to share, it's optional. And it has been really beautiful to see. We don't know who's coming, they sign up and we meet up in the trailhead. And usually there's two, maybe three guides, depending on the number of people. And we start hikes and then we stop in some places we usually kind of case out hikes and spaces before. Because we have two or three stops where we do little small processing groups.

And we talk about our person and we share memories of that person, the impact of that person in their life. And we compare with nature sometimes the changes of seasons. How does that reflect on the changes that grief does throughout time. And the rebirth when we see a log and there's a whole bunch of new growth in that dead tree. And the same thing with our grief, after the loss, we adjust and we move forward, and we bring that person with us in a different capacity. And just being with other people. So you can talk about your feelings with no judgment.

Tori Steffen:  Right. Yeah, it sounds like kind of the perfect safe space to provide people who are grieving. And you're right, you just have to get away from everyday life sometimes. Because work and school and all these responsibilities get in the way of processing the heavy emotions. So that's amazing. Yeah, it sounds good.

Debora de Souza:  Being outdoors really helped.

Tori Steffen:  Great program.

Debora de Souza:  Yeah, it's very nice because being outdoors, I even feel myself just with the trees and the sounds of nature. You are walking, you're also moving. We do have strategic stop times, but they're brief. I think it's a great idea, I'm glad that the board, the founders, the couple people that found that decided to expand and move forward and be more inclusive.

Tori Steffen:  Yeah, it sounds like they're doing a great job with being inclusive for all types of experiences, so that's amazing.

Debora de Souza:  Absolutely.

Tori Steffen:  What are the main benefits that you see the participants gaining from their experience in the hiking program?

Debora de Souza:  I think it's community. We talk a lot about acceptance, just have a space. Grief can still be a taboo topic in a lot of places at work or people, maybe people rush you like, "Oh, it's been already six months or a year." You hear a lot of those terms so people feel like, oh, I should ... it's not okay for me to talk about it or to bring it up. So people push it down their emotions, so that's a space that they can do. And it's amazing that we were all strangers in the beginning of the hike, it's oftentimes by the end, people exchange numbers or want to keep in touch. Or people come to several, we have hikes once a month, at least. So we'll see people coming again and again and them bringing children or bringing a friend. So definitely community and acceptance. And being outdoors. Yeah, being outdoors is always good.

Tori Steffen:  Right. Yeah, it sounds like just the perfect mixture of things to help you along that healing journey. Yeah. And that's amazing.

Well, if we could discuss the topic of grieving parents, specifically. There's a specific topic around it. So how it's become more acceptable for men to grieve where it was previously not really as accepted. Would you mind going into that a little bit?

Debora de Souza:  Yeah, absolutely. I think it's even harder for men. I think sometimes men get forgotten. And especially around parenting, I think we're talking about specifically about... there's another volunteer position that I have with the Perinatal Support Washington. I'm a warm line for answering the phone on certain shifts during the day. And most of the callers are women who are experiencing PMAD, Perinatal Mental Anxiety Disorders. So postpartum depression, postpartum anxiety, some miscarriages, sometimes stillbirth or birth trauma is very common. So we do a lot of talking to them, just trying to assess their situation, how we can provide support.

Sometimes every once in a while we get a dad or a grandfather calling to support someone that they love in their lives, who they're concerned about. So there's a lot of psycho-education, a little bit, like “Where do I go with this? How can I help my daughter or my wife?” And eventually, as you get to work with them, we have extended peer support. So if the person... until they get connected with some sort of therapist or service, they have the option to keep working with us and we can call them once a week. We can set up a cadence and we have brief calls with them. And I found that with fathers or with males, eventually it comes to their grief and their experience with, in the case of a miscarriage or stillbirth. And being able to express that because they think it's all around the woman, the mother, the expecting person.

Which makes sense and they feel a little bit lost or they say, "Oh, my wife just had a baby. And all the attention goes to her and I'm not feeling safe to say that because that's not cool. What kind of dad are you? What about me?" Or, "I'm grieving my wife because it used to be just me and her, and now there's this baby who's a newborn is very demanding." So we end up supporting and doing a lot of psycho-ed and just help and listening to both parents, to both caretakers. And grandparents do it the same and call and say, "I don't know how to help more or how to be present to my daughter, to my family member."

As far as personal experience with a male, a coworker, I did suffer a pregnancy loss and I was far along enough that people in my work knew. So I was away for recovery. And when I come back to the office a few weeks later, one of my coworkers, another gentleman that was in my team and asked me out to lunch, he wanted us to talk. And I think in the beginning, just to support me, “Welcome back, how can we be there for you?” But more in a private setting. And he got really emotional during that meeting with me and start crying and openly grieving a son that he lost, I believe it was like 30 years earlier. Because we talked about how weird was talking about pregnancy. But because I was so evidently pregnant, there was no way around it. And he just shared his own story that back when his wife lost their first child, he had nobody... men do not participate. They never talked about it. It was like they did the medical procedures, she came home. That wasn't even their first child, the second child was.

So it was just culturally different. I'm sure at the time, things were difficult. We have come a long way of normalizing not only perinatal mental health, but miscarriages and birth losses and challenges with IVF, challenges with fail adoption, the journey to become a parent can be riddled with challenges. And fathers feel it, too. And that gentleman really touched my heart, I will never forget because it end up kind of me making space for him and listening about his boy and how much that hurt him. That pregnancy wasn't viable and he didn't get to hold him. So it was a very powerful, and beautiful moment. And I'm very thankful that he felt safe to share with me.

Tori Steffen:  Yeah. And it really brings to light that men experience the same grief. And it is more evidently the mother is physically going through it and that's definitely significant. But the father is in there just as much. It's their child, as well.

Debora de Souza:  Absolutely. A lot of anxiety for dads when the first baby comes.

Tori Steffen:  Oh yeah, I bet.

Debora de Souza:  They're adjusting too. So it's nice to have a service like Perinatal Support Washington. So we have fathers volunteers, as well. So if you want to, you don't have to talk to a mom, you can also talk to a dad who has been through postpartum depression with their wives and whatnot. And it's really nice. It's a really great service.

Tori Steffen:  It sounds like just such a great resource for new parents, anybody who's gone through it.

Debora de Souza:  Oh, the landscape has changed. Even from my time of my losses, I really struggled to find someone, a therapist that was familiar with perinatal mental health, how that could support me. And I'm glad there's a lot more resources, I think, right now, nowadays.

Tori Steffen:  Yeah, that's amazing. It's not something that I have seen be super common out there. But it's absolutely needed, I would think. So, that's amazing. So what are some good resources that you know of that grieving parents can look into maybe after losing a child or losing a loved one? Are there any good go-to resources that you know of?

Debora de Souza:  There's several, like I said, the landscape did change. I will share the Wild Grief link and page, as well as the Perinatal Support Washington for Washington only. But there's also Perinatal Support International. A lot of resources, a lot of support groups are ran by those organizations and they're usually free of cost. And now since COVID, especially, they're online. They also list other ones, sometimes with churches or with community centers that people can find locally and connect. And they're a lot of support groups, which is wonderful. Because the safe spaces and the peer-to-peer support can be vital.

One that I like a lot myself and they offer trainings and they're very laid out website, it's called the Return to Zero. And they made a movie, they have a book. It's a couple talking about the experience when they lost their son, their first child. And from there, it kind of sprout into this beautiful website, where you can go in there as a parent grieving. And they really go the gamut, like I said, in fertility, IVF, anything in the Journey to Parenthood. Beautiful site, a lovely work, very well done and well set up. So you can get from referral to therapists, training classes. They have a lot of training classes for volunteers and people that work with parents and people in experiencing PMADs.

And it's just something that I wish I had access to back in the day because you just feel it can be very lonely. You go through very... and nobody wants to talk to you because people think that it's a baby and it's going to make you sad. Or they don't know what to say. I get it. It get all that. And when all you want to do is talk about it. And that's the funny part, all you want to do is ... especially when a baby. A baby is a baby and has a whole life already, the minute that you realize you're expecting.

Tori Steffen:  Yeah.

Debora de Souza:  It's amazing how you're already think the weddings, it's sounds silly. But a whole life become concrete. So that's another thing, as well. We used to have a miscarriage early on, sometimes people say, oh, at least try to do those kind of modifiers. “Well at least it was early enough. Or at least you can get pregnant again.” And for a parent, I think that life has already happened from conception on. So those are great support that folks can go to and get all kinds. And very cultural responsive too, and inclusive because different cultures... and I think I can speak from my culture, as well. It's very unique sometimes how you deal with the topic, how you deal with grief itself. So they do a very good job of having a multicultural approach and training and language that is inclusive to all parents. So Return to Zero, I will share the link, as well. They're excellent.

Tori Steffen:  Perfect. Yeah, we'll make sure to link those in the notes later, but that's so helpful. Thank you for sharing the resources. I'm sure it'll be really helpful to hopefully some of our audience.

Debora de Souza:  I hope so. Yeah.

Tori Steffen:  Awesome. Well, are there any final words of advice or anything else you'd like to share with the listeners today?

Debora de Souza:  No, it's been really a pleasure. I think I said my thing is about normalizing grief, normalizing sharing feelings. And even if we don't know what to say, sometimes not saying anything, just being there. Just letting the person know that you are there to say... and it sounds cliche again, but it's so important so you don't feel so lonely. You feel like it's okay, people understand. Because that's one common experience that we’re all going to have. At some point, we're going to lose someone.

But also other griefs, as well. It doesn't have to be a death of a person, ending of relationships. I mean, through COVID there were so many changes. And I always like to think about positive changes. Some people say positive changes, happy changes bring grief. And I'm like, oh, it's true. In order for something new to happen, something had to die or change. And I didn't think of that. I said, well, think about a wedding, there's a different life that you're entering now. But things are changing... sometimes and a lot of times bring grief with it. And I think it's uncomfortable, we don't like to talk about it.

Tori Steffen:  Right and it's like-

Debora de Souza:  We all feel it.

Tori Steffen:  Exactly. And those big positive changes are great. You're having-

Debora de Souza:  New jobs, moving to another country. I mean, there's so much that you can think, "Oh, this is so fun and exciting." But there's always some... the other side, that you're leaving something, there's a cycle ending in some way. And just honoring that and taking time to feel the feels just like the best... it's beautiful. Doesn't apply only to death, physical death.

Tori Steffen:  Right. Yeah, just taking the time to process the change, I think will help you, lead you into the future and make it easier on you emotionally.

Debora de Souza:  And be a kinder human being. Understand when other people go through their change, it promotes kindness. It's definitely a positive in my book.

Tori Steffen:  Yeah, absolutely. Well, thank you so much for sharing your knowledge with us today, Deb. It was great talking to you.

Debora de Souza:  Thank you so much. It's my pleasure.

Tori Steffen:  All right. And thank you everybody for tuning in and we'll see you next time.

Please note: The views expressed by the interviewee are for educational and informational purposes only, are not meant to diagnose or treat any condition, and do not necessarily reflect the views of Seattle Anxiety Specialists, PLLC.


Editor: Jennifer (Ghahari) Smith, Ph.D.

Therapist Claire Jack on Autism Spectrum Disorder

An Interview with Therapist Claire Jack

Claire Jack, Ph.D. is an Anthropologist and Therapist based in Scotland. Dr. Jack specializes in working with women with Autism Spectrum Disorder and has published “Women with Autism: Accepting and Embracing Autism Spectrum Disorder as You Move Towards an Authentic Life”.

Jennifer Ghahari:  Hey, thanks for joining us today for this installment of the Seattle Psychiatrist Interview Series. I'm Dr. Jennifer Ghahari, research director at Seattle Anxiety specialists. We are a Seattle-based psychiatry, psychology and psychotherapy practice specializing in anxiety disorders.

I'd like to welcome with us anthropologist and therapist, Claire Jack, who joins us from Scotland today. Dr. Jack received her Ph.D. in anthropology and has subsequently trained as a therapist over 10 years ago. In her late forties, she was diagnosed with autism spectrum disorder and has sought to help others understand more about this often challenging disorder. Before we get started today, can you let our listeners know a little bit more about you and what made you interested in becoming an anthropologist as well as a therapist?

Claire Jack:  Okay. Yeah, actually, I suppose for me the two things link up really quite a long time ago. When I was 18, I started to train as a psychologist, I started to do my degree in psychology. For various reasons, it just wasn't really the right course for me. I shifted to archeology, so I've had a long route to get here, which led on to anthropology and history because, obviously, anthropology and archeology are quite closely related. I think there was just always that interest in how people work, how they communicate, so very much was studying that within anthropology.

I really got into therapy from my own personal experience. I had a really bad driving phobia and I had had hypnotherapy a long time ago, which was reasonably successful, but not fully successful. I had an incredible hypnotherapy session for my driving phobia and that just made me want to train. I trained in that, I did counseling, I did life coaching. That's it, really, I've been working as a therapist now I think for probably nearly 15 years and I've had a training school for 10 years, so I combined the two.

Jennifer Ghahari:  Great. Can you explain to our listeners what autism spectrum disorder is?

Claire Jack:  Okay. Autism spectrum disorder is a developmental disorder, so that means that you're born with the condition. When we're thinking about it, we can really think about three levels of autism, we've got level one, level two, level three. I think it's really important to remember, it's a huge spectrum, so very big spectrum of experience.

People with level one autism, that's what I've been diagnosed with, that's equivalent to what used to be called Asperger's syndrome. I think in 2013, you no longer have an official diagnosis of Asperger's. That is roughly equivalent to level one autism. People with level one lead independent lives on the whole; average or above average intelligence. They have symptoms, I think it's important not to downplay how difficult level one autism is, but most people can lead a certain completely independent life.

Level two autism, we're talking about people that maybe need some kind of assistance, might struggle to be lead independent lives.

Level three is often associated with learning difficulties; it might include people who non-verbal.

It seems like it's such a big spectrum that you almost think what have people, say like me, who's leading a completely independent life, with someone who has special needs and a lot of help, what have we got in common? It's really thinking about the traits. People with autism, we have sensory issues, difficulties processing sensory stimuli, communication and social difficulties. We might have difficulties with restricted interests. Emotional regulation difficulties are really common as well. Across the spectrum, people have these traits that they share in common.

Actually, I don't have anything visual that I can show this on, but I think when we think of a spectrum, we often think of a linear spectrum, from good to bad or difficult to easy, but actually, if you think of it as a pie chart and think of the symptoms and think, well, somebody might be much more affected in terms of communication difficulties, but maybe less affected in terms of restricted interests, or they might have difficulties with eye contact, but less emotional regulation difficulties. Instead of thinking of it a spectrum, we can think that people have really diverse experiences within autism as a whole.

Jennifer Ghahari:  Wow, great. Thank you for explaining that and the different levels. Unfortunately, without more information known about autism among the general public, those without it can often feel frazzled or annoyed at some of the ways it may present in people. It's fairly common to hear notions like, "Why can't they stop doing that? Why don't they act normal?" Can you explain what it's actually like to experience autism? What does it feel like?

Claire Jack:  Yeah. I suppose, first of all, there's not a choice in it. You are experiencing the world differently and you're processing the world differently, so you can't think yourself out of autism. I think that's the first thing for other people to remember. Actually, although I'm autistic myself, I come into contact with autistic people and we don't all necessarily get on together, so I can see it from both sides. An example might be, I do a lot of teaching, I teach students, and sometimes my autistic students need me to really explain things in a huge amount of detail, I need to spend an awful lot more time going over things, they might take things that I say very literally so I have to go over that, and just I end up spending a lot more time with them. I can understand that they need that time, but I can see that that could be frustrating for somebody else.

Yeah, and to come back to your question, it's important to know that when something is happening for somebody autistic, it tends to be happening in a really extreme way and there is nothing that they can do about that. For instance, when I was a child, because I think a lot of people learn about autism because they've got maybe autistic children, when I was a child, I was very well behaved; never, ever misbehaved. That was what I wanted to be like, I just wanted to be a really well-behaved kid. But if I was triggered, I was a monster; absolutely, I was horrific.

One time in the hospital, I was there for an operation, I attacked all the nurses, I got all the medical equipment, I threw everything everywhere. I scratched my mum so badly that she still has the scars. I was five, but there was no controlling me. It wasn't a choice; I never would've attacked like that. I think that's just really important to think, because autistic people have to process things in a different way, you have to understand it is different. It's not the same, no matter how they might present most of the time to somebody.

Jennifer Ghahari:  Great. You mentioned triggers, could that be something like lights or smells or sounds?

Claire Jack:  Absolutely. I think when I'm thinking about triggers, I'm usually thinking about emotional triggers and sensory triggers. What you're talking about is more in terms of sensory processing. An example might be going to the supermarket and dumping your bags because you can't be there any longer, or a huge one for me is people scraping their plates. As a kid, I couldn't stand, especially if we had unglazed plates in the house, that noise, I just couldn't be in the room. Even as an adult, I've learned to cover it a bit, but that kind of thing, I experience it very, very deeply. It's like a physical, horrific pain. Both my sons have that sensory thing as well, they're exactly the same.

Emotional triggers can also be a huge thing as well. I think often, if you're not being understood or you're not being listened to, maybe somebody's given you too much information. I had a client recently, a student, and she was just getting too much information that she wasn't able to take in and had a complete meltdown. I think those are two really big triggering things for autistic people.

Jennifer Ghahari:  Great, thank you. On your website, you mentioned that males and females with autism actually present differently. Can you explain the differences?

Claire Jack:  Okay. Well, I think there are a lot of similarities, in terms of the traits, there are really big similarities, but women tend to camouflage or mask their autism. We know from a really early age, girls tend to be driven to be more social than boys. That goes from neurotypical girls and autistic girls, but there is this drive. They want to engage a bit more, little autistic girls than little autistic boys, so they find ways of trying to appear "normal" so that they pass. For that reason, girls tend to be awful lot better at making eye contact, at having conversations, at just blending in.

Also, in terms of things like interests, there seems to be a difference. The classic, what we might think of, collecting Star Wars toys or little trains or something that boys might do, collecting things, girls often become really obsessed with other people. It could be crushes, it could be bands, film stars, even a best friend.

Again, they tend to go under the radar because they're presenting very differently to boys. They still have the restricted interests, still have the social difficulties, still have all of it going on, but it tends to look really different in girls and boys.

Jennifer Ghahari:  In terms of comorbid mental health conditions, what do those with autism tend to experience? Is it anxiety, depression, things like that, or any other?

Claire Jack:  Yeah, absolutely. They tend to have really high levels of anxiety and depression. What the research shows is that that tends to be linked to the degree of camouflaging. It's not necessarily linked to how autistic you are, how severe your autism is, but how much you try and cover that. Again, women tend to maybe have worse mental health than men and that tends to be linked to how much they mask it, because when you're masking all the time, it's absolutely exhausting. It's a strange just doing anything because you're putting on such a constant act. That's a big reason for the certain mental health issues.

Suicidality is also a really big problem with autistic people, higher levels of suicidality and also more of a likelihood that it's followed through on as well. A lot of autistic, well, I don't know a lot, I'm possibly using the wrong term, but certainly some autistic people are misdiagnosed with things like bipolar disorder as well, because meltdowns can seem horrific, it can seem like a bipolar episode. Some of the extreme behavior that autistic people present with as well can sometimes be misdiagnosed as bipolar. Some people do have autism and bipolar, but the misdiagnosis is something that comes to light quite often as well.

Jennifer Ghahari:  When we diagnosis this, is it a psychiatrist, a therapist?

Claire Jack:  It's usually a psychiatrist, sometimes clinical psychologist will diagnose, for a full clinical diagnosis. Therapists, such as myself, might offer a nonclinical diagnosis. I suppose one of the reasons certainly that I offer that is just the problems that people have getting a full clinical diagnosis. The wait times can be huge, the expense can be really extreme, and so sometimes people might go to someone like myself, even as a stop-gap, so that they have something to work with whilst they're waiting a couple of years for a diagnosis.

Jennifer Ghahari:  Oh wow; years.

Claire Jack:  Yeah, absolutely. Yeah, I don't know about every country, and obviously in the UK we have the NHS, so it's a free diagnosis, but that can certainly be up to a couple of years waiting. It's a massive wait.

Jennifer Ghahari:  Which could lead, as you said, to the anxiety and depression.

Claire Jack:  Absolutely, yeah.

Jennifer Ghahari:  Wow. In terms of treatment, how would autism spectrum disorder typically be treated, from a therapeutic standpoint?

Claire Jack:  I think this is a really interesting question. The recognized treatment for autism is applied behavioral analysis, ABA. To be honest, it's not something that I've had and it's not something that I'm trained in, I'm no expert in ABA, but basically, it's... I'm trying to think of the best way to describe this. It's aimed towards people maybe having a more productive, and again, inverted commas, “normal” life. It's quite a rewards- and punishment-based therapy, as far as I know. It's not particularly popular within the autistic community, because the autistic community are of really working towards accepting autism and accepting yourself. But certainly, I think it's very common amongst autistic children, trying to almost train them to be less autistic. Like I say, it's not a very popular approach within the autistic community.

CBT can be effective, but I think what's really important is you need to go to somebody who understands autism. I've been trained in CBT and I do work with CBT, but it doesn't necessarily work with autistic people unless you really recognize the limitations, because trying to push yourself and change your beliefs and come up with new behaviors can be really impossible for people with autism. What I find is that a lot of people who have been down traditional therapy routes just haven't got the help that they need at all. A lot of them have talked about therapists, and actually I've had this experience looking for past trauma to explain what I'm experiencing, because it can present in a very similar way, and actually there's maybe nothing particular in the past that can explain what you're experiencing now.

There are autistic therapists out there. I think just having that level of understanding from a personal perspective and being able to educate your clients, I find with autistic clients, I'm educating them a lot more than I would with other clients and that's a hugely important part of therapy. But to me, therapy is all about accepting yourself, it's accepting you're autistic beginning to work to take the pressures off and work with, I don't like to call it limitations, differences. Just think, yeah, I'm different in this way, but this is a solution for it. It's all about acceptance.

Jennifer Ghahari:  Oh, that's fantastic, thank you. In terms of self-care tips, are there any that you can recommend that people can try at home or just on their own without any therapy?

Claire Jack:  Yeah. I think one of the big problems people with autism have is emotional regulation. The worst effect of that is when people have meltdowns, which can be absolutely horrific. It can involve leaving your house, putting yourself in danger, breaking things, putting other people in danger, they can be horrendous. But there are signs at some point that you are probably heading from meltdown, so it's really important to begin to recognize your own signs. They don't come out of nowhere.

You might just recognize you're a bit tired, some people might stim, so it could be touching their face or rocking backwards and forwards or pacing, or even talking a bit loud, there will be something. If you can think about it as an emotional regulation timeline, you can begin to recognize that actually you need to stop and don't go to the supermarket. I'm mentioning supermarkets because I hate them, but don't go to the supermarket if you're starting to talk a bit quickly. At that point, you start to rest. I think that's a huge tip, start to think about a timeline and what you need.

Also, you need a recovery time. I think this is, again, autistic people are different. They take ages to recover from a meltdown. It might be hours, it could even be days. You need to think, “Do I need to rest here, do I need to avoid something?” There's a theory that lot of people use, called “spoons theory”, and it was actually developed by somebody with I think it was chronic fatigue, it was some kind of chronic illness. It's a great way to think about self-care. You need to think, “I have X amount of spoons this morning, so I've got 10 spoons. I'm not going to get anymore, when they're gone, they're gone.” I can think, “Right, I've got a meeting, that's two spoons, I've got the school run, that's going to be three, but I don't get any more at the end of the day.” You might actually only be starting with six. It's a real check in with yourself and thinking, I don't have limitless capacity, because fatigue is a huge thing as well.

I like to think of it in terms of pebbles, because I live by the coast. Literally, you have your pebbles. You can even take a pebble out with you, but you just don't get anymore. Again, without being negative or trying to think about limitations, it is a reality check, that you do need to look after yourself or you could end up being exhausted and frazzled and have a meltdown and all of these other things.

Jennifer Ghahari:  Yeah, I think you bring up a good point. I think a lot of people without autism don't realize how bad a meltdown can be, number one. Yes, people can witness it, but then, like you said, the recovery can be hours or days. Autistic people really need to do self-care. If they can't go to an event or if they're wearing noise-canceling headphones, it's not because they want to look stylish or interesting, it's because they actually need to do this for their own health.

Claire Jack:  Yep, yep, absolutely. I know a lot of my clients love noise canceling headphones and some will wear them in the house. I was talking to someone recently, big family, including stepchildren, and just the noise at dinner time was just too much to cope with, and she started to wear these. Her family thought it was amusing at first then they accepted it. It just made such a difference. Yeah, but yeah, it's not about trying to look for attention or anything else, it is about trying to keep yourself safe.

Jennifer Ghahari:  That's great. I'm glad that client found that way to do it.

Claire Jack:  Yeah, it's amazing. I think once you accept it, the solutions you come up with are really inventive.

Jennifer Ghahari:  This has gone by pretty quickly. I always think that's a good sign of a good interview. Usually, we wrap up our interviews by asking if you have any parting words of advice. I'm actually going to ask you that twice. First, do you have any parting words of advice that you'd like to offer for those diagnosed with autism disorder?

Claire Jack:  I think it's a really difficult thing at the beginning to come to terms with, particularly for adults. I think it's different if you've maybe known since you were younger, and certainly the way parents impart that knowledge to their children is really important. But I think just if you find out a bit later in life, as most of my clients have, you've got to be really patient with yourself. It can be scary, you can think, “My life's going to be limited, I can't have the career I want, can I have a family?” Yes, you can do all of these things, but you maybe need to just find different ways of managing it, but it really doesn't have to limit your life in any way.

To me, it's something that it can really open up doors and it can open up new ways of thinking and being once you've begun to accept it. I think that's the really important thing. If you keep battling against, it's always going to appear like this terrible thing that's going to hold you back, but if you can accept it... Autistic people tend to have different ways of viewing the world, they maybe have different talents, they might be particularly good in some areas, so once you can accept all of that, then you can lead this incredible, rich life. It might be slightly different or it might work in slightly different ways, and that's completely fine. I think it's accepting that that's completely fine.

Jennifer Ghahari:  Do you have any words of advice for those without autism that you want them to be aware and cognizant of?

Claire Jack:  Well, I think first of all, the client base that I work with, you wouldn't know they're autistic. I think some people think they're giving a compliment by saying that, “You don't look autistic at all,” which is actually really frustrating because they don't see what's happening in the background. When I went to my GP initially to ask for a referral to a psychiatrist, I was just completely knocked back on the basis that I can have a conversation, I can smile, I can look somebody in the eyes. I'd done tons of research and I really tried to explain why and what was going on for me, and it was, "You don't look autistic." I think it's terribly important, if you're not autistic, don't judge somebody, because you don't know how much effort they are putting into something.

It's also, I think, really important to recognize it's real. Most of the people that I work with tend to be really lucky in terms of their partners. I think autistic people are often drawn together anyway, but even if there is a non-autistic partner, most of my clients have had a lot of support, but I have had some clients who've had a really horrible experience from husbands and partners who will not believe that they're autistic and it doesn't seem to matter what they say. Even when they get a full diagnosis, they will not believe it.

I think if somebody has a diagnosis, even if they haven't, even if they're self-diagnosing and have done the research, what they're experiencing is very real. Just because you don't understand it doesn't mean it's not real. Again, just thinking about autistic people having to be inventive with some of their solutions is a great opportunity for partners, children, parents, to be inventive with the autistic person as well, be open to it. Accept if they don't want to do something, they don't have to do that thing. You can probably work around it, you can come up with a different solution. If they don't want to come to your family party, fine. Do they have to go? Probably not.

It's about, I guess, looking at societal norms, which very much are made to fit neurotypical people. This is where I'm going into my anthropology bit here, and I'm thinking, well, do we have to adhere to these norms, and why would we? I think, again, it's a great opportunity, but people have to be really open to accepting their loved one or colleagues or whoever has autism and thinking I can either treat this in a way that's going to stress this person or I can support them, because this is absolutely real for them.

Jennifer Ghahari:  That's really great. Thank you so much. Dr. Jack, it's been wonderful talking with you today and we really appreciate your contributions to our interview series.

Claire Jack:  Thank you.

Jennifer Ghahari:  Have a good day.

Please note: The views expressed by the interviewee are for educational and informational purposes only, are not meant to diagnose or treat any condition, and do not necessarily reflect the views of Seattle Anxiety Specialists, PLLC.


Editor: Jennifer (Ghahari) Smith, Ph.D.